Publications

Zimmermann, B. M., Fanderl, J., Koné, I., Rabaglio, M., Bürki, N., Shaw, D. M. and Elger, B. (2021) “Examining information-seeking behavior in genetic testing for cancer predisposition: A qualitative interview study”, Patient Education and Counseling. Elsevier, 104(2), pp. 257–264. doi: 10.1016/j.pec.2020.09.019.   edoc
Schneble, C. O., Martani, A., Shaw, D. M. and Elger, B. S. (2020) “Social-Media und Social-Messaging im Spital”, Jusletter. Weblaw, (16. November 2020), p. 12. doi: 10.38023/daa0b2fd-c9f1-4185-93ba-3bfbd763938b.   edoc
De Clercq, E., Rost, M., Gumy-Pause, F., Diesch, T., Espelli, V. and Elger, B. S. (2020) “Moving Beyond the Friend-Foe Myth: A Scoping Review of the Use of Social Media in Adolescent and Young Adult Oncology”, Journal of Adolescent and Young Adult Oncology. Mary Ann Liebert, 9(5), pp. 561–571. doi: 10.1089/jayao.2019.0168.   edoc
Rost, M., Nast, R. L., Elger, B. S. and Shaw, D. M. (2020) “Trust trumps comprehension, visceral factors trump all: A psychological cascade constraining informed consent to clinical trials: A qualitative study with stable patients”, Research Ethics. Sage, 17(1), pp. 87–102. doi: 10.1177/1747016120914335.   edoc
Starke, G., De Clercq, E., Borgwardt, S. and Elger, B. S. (2020) “Computing schizophrenia: ethical challenges for machine learning in psychiatry ”, Psychological medicine. Cambridge University Press, pp. 1–7. doi: 10.1017/S0033291720001683.   
Zimmermann, B. M., Koné, I., Shaw, D. M. and Elger, B. S. (2020) “Autonomy and social influence in predictive genetic testing decision-making: A qualitative interview study”, Bioethics. Wiley, pp. 1–8. doi: 10.1111/bioe.12816.   edoc
Merkt, H., Haesen, S., Meyer, L., Kressig, R. W., Elger, B. S. and Wangmo, T. (2020) “Defining an age cut-off for older offenders: a systematic review of literature”, International Journal of Prisoner Health. Emerald, 16(2), pp. 95–116. doi: 10.1108/IJPH-11-2019-0060.   edoc | Open Access
Schneble, C. O., Elger, B. S. and Shaw, D. M. (2020) “Google’s Project Nightingale highlights the necessity of data science ethics review”, EMBO Molecular Medicine. Wiley Blackwell, 12(3), p. e12053. doi: 10.15252/emmm.202012053.   edoc
Schneble, C. O., Elger, B. S. and Shaw, D. M. (2020) “All Our Data Will Be Health Data One Day: The Need for Universal Data Protection and Comprehensive Consent”, Journal of Medical Internet Research. JMIR Publications, 22(5), p. e16879. doi: 10.2196/16879.   edoc
Schneble, C. O., Elger, B. S. and Martin Shaw, D. (2020) “Data protection during the coronavirus crisis”, EMBO Reports. Wiley Blackwell, 21(9), p. e51362. doi: 10.15252/embr.202051362.   edoc
Elger, B. S., Mirzayev, F., Afandiyev, S. and Gurbanova, E. (2020) “Ethical issues in tuberculosis screening and the use of new drugs for prisoners”, The international journal of tuberculosis and lung disease, 24(Supplement 1), pp. 57–60. doi: 10.5588/ijtld.17.0899.   edoc
Martani, A., Egli, P., Widmer, M. and Elger, B. S. (2020) “Data protection and biomedical research in Switzerland: setting the record straight”, Swiss Medical Weekly. EMH Schweizerischer Arzteverlag , 2020(150), p. w20332. doi: 10.4414/smw.2020.20332.   edoc
Geneviève, L. D., Martani, A., Shaw, D., Elger, B. S. and Wangmo, T. (2020) “Structural racism in precision medicine: leaving no one behind ”, BMC medical ethics. BioMed Central, 21(1), p. 17. doi: 10.1186/s12910-020-0457-8.   edoc
Chivilgina, O., Wangmo, T., Elger, B. S., Heinrich, T. and Jotterand, F. (2020) “mHealth for schizophrenia spectrum disorders management: A systematic review”, International Journal of Social Psychiatry. Sage Publications, 66(7), pp. 642–665. doi: 10.1177/0020764020933287.   edoc
Poppe, C., Elger, B. S., Wangmo, T. and Trachsel, M. (2020) “Evaluation of decision-making capacity in patients with dementia: challenges and recommendations from a secondary analysis of qualitative interviews”, BMC Medical Ethics. BioMed Central, 21(1), p. 55. doi: 10.1186/s12910-020-00498-y.   edoc
Zimmermann, B. M., Shaw, D., Heinimann, K., Knabben, L., Elger, B. and Koné, I. (2020) “How the ‘control-fate continuum’ helps explain the genetic testing decision-making process: a grounded theory study”, European journal of human genetics : EJHG : the official journal of the European Society of Human Genetics. Nature Publishing Group, 28(Supplement 5), pp. 1010–1019. doi: 10.1038/s41431-020-0602-3.   edoc
Favaretto, M., Shaw, D., De Clercq, E., Joda, T. and Elger, B. S. (2020) “Big Data and Digitalization in Dentistry: A Systematic Review of the Ethical Issues”, International journal of environmental research and public health. Multidisciplinary Digital Publishing Institute , 17(7), p. 2495. doi: 10.3390/ijerph17072495.   edoc
Favaretto, M., De Clercq, E., Schneble, C. O. and Elger, B. S. (2020) “What is your definition of Big Data? Researchers’ understanding of the phenomenon of the decade”, PLoS ONE. Public Library of Science, 15(2), p. e0228987- . doi: 10.1371/journal.pone.0228987.   edoc
Favaretto, M., De Clercq, E., Gaab, J. and Elger, B. S. (2020) “First do no harm: An exploration of researchers’ ethics of conduct in Big Data behavioral studies”, PLoS ONE. Public Library of Science, 15(11), p. e0241865. doi: 10.1371/journal.pone.0241865.   edoc
Poppe, C., Koné, I., Iseli, L. M., Schweikert, K., Elger, B. S. and Wangmo, T. (2020) “Differentiating needs of informal caregivers of individuals with ALS across the caregiving course: a systematic review”, Amyotrophic lateral sclerosis & frontotemporal degeneration. Taylor & Francis, 21(7-8), pp. 519–541. doi: 10.1080/21678421.2020.1771735.   edoc
Kollbrunner, L., Rost, M., Koné, I., Zimmermann, B., Padrutt, Y., Wangmo, T. and Elger, B. (2020) “Acute and transitional care or rehabilitation? Retrospective analysis of discharge planning from a municipal hospital in Switzerland”, BMC Health Services Research. BioMed Central, 20(1), p. 712. doi: 10.1186/s12913-020-05547-1.   edoc
Rodella Sapia, M. D., Wangmo, T., Dagron, S. and Elger, B. S. (2020) “Understanding access to professional healthcare among asylum seekers facing gender-based violence: a qualitative study from a stakeholder perspective”, BMC international health and human rights. BioMed Central, 20(1), p. 25. doi: 10.1186/s12914-020-00244-w.   edoc | Open Access
Favaretto, M., De Clercq, E., Briel, M. and Elger, B. S. (2020) “Working Through Ethics Review of Big Data Research Projects: An Investigation into the Experiences of Swiss and American Researchers”, Journal of Empirical Research on Human Research Ethics. Sage, 15(4), pp. 339–354. doi: 10.1177/1556264620935223.   edoc
Zimmermann, B., Starke, G., Shaw, D., Elger, B. and Koné, I. (2020) “Actionability and scope should determine the extent of counselling for presymptomatic genetic testing”, Swiss Medical Weekly. EMH Schweizerischer Arzteverlag , 150, p. w20274. doi: 10.4414/smw.2020.20274.   edoc
De Clercq, E., Rost, M., von der Weid, N., Ansari, M. and Elger, B. S. (2020) “To be or not to be in the social media arena? The perspective of healthcare providers working within adolescent and young adult oncology in Switzerland”, The International Journal of Adolescent Medicine and Health, pp. ijamh–2020.   
Starke, G., De Clercq, E., Borgwardt, S. and Elger, B. S. (2020) “Why educating for clinical machine learning still requires attention to history: a rejoinder to Gauld; et al”, Psychological medicine. Cambridge University Press, 51(1), pp. 1–2. doi: 10.1017/S0033291720004766.   
Wangmo, T. and Elger, B. (2019) “Medical and ethical dilemmas: Older Prisoners”. International Committee of the Red Cross.   edoc
Elger, B. (2019) “Problématique éthique de l’exercice de la médecine en prison”, in Wolff, H. and Niveau, G. (eds.) Santé en Prison. Chêne-Bourg: RMS Editions, pp. 133–152.   edoc
Gaggioli, G., Imber, A. and Elger, B. (2019) “Les décès en détention: vers un cadre international d’investigation et de prévention”, in Wolff, H. and Niveau, G. (eds.) Santé en Prison. Chêne-Bourg: RMS Médecine et Hygiène, pp. 779–794.   edoc
Haesen, S., Geneviève, L. and Elger, B. (2019) “Personnes agées en Prison”, in Wolff, H. and Niveau, G. (eds.) Santé en Prison. Chêne-Bourg: RMS Editions, pp. 317–330.   edoc
Imber, A. and Elger, B. (2019) “La recherche impliquant des personnes en détention”, in Wolff, H. and Niveau, G. (eds.) Santé en Prison. Chêne-Bourg: RMS Editions, pp. 153–168.   edoc
Jotterand, F., Ienca, M., Wangmo, T. and Elger, B. S. (eds.) (2019) Intelligent Assistive Technologies for Dementia: Clinical, Ethical, Social and Regulatory Implications. Oxford: Oxford University Press. doi: 10.1093/med/9780190459802.001.0001.   edoc
Rost, M., De Clercq, E., Rakic, M., Wangmo, T. and Elger, B. (2019) “Barriers to Palliative Care in Pediatric Oncology in Switzerland: A Focus Group Study”, Journal of Pediatric Oncology Nursing. SAGE Journals, 37(1), pp. 35–45. doi: 10.1177/1043454219871082.   edoc
Zimmermann, B., Elger, B. and Shaw, D. (2019) “Media Coverage of Ethical Issues in Predictive Genetic Testing: A Qualitative Analysis”, AJOB Empirical Bioethics. Taylor & Francis, 10(4), pp. 250–264. doi: 10.1080/23294515.2019.1670275.   edoc
Elger, B. S. (2019) “Ethical Concerns About the Use of Assistive Technologies: How to Balance Beneficence and Respect for Autonomy in the Care of Dementia Patients”, in Jotterand, F., Ienca, M., Wangmo, T., and Elger, B. S. (eds.) Intelligent Assistive Technologies for Dementia: Clinical, Ethical, Social and Regulatory Implications. Oxford: Oxford University Press, pp. 147–165.   edoc
Wangmo, T., Handtke, V., Bretschneider, W. and Elger, B. S. (2019) “Menschenrechte und Ethik: Die Gesundheitsversorgung von älteren gefangenen Personen”, in Frewer, A., Giese, C., Green, C., Mahler, C., and Moser, H. (eds.) Menschenrechte und Ethik in der Medizin für Ältere. Beiträge des Preisträger-Forums in München mit Projekten aus Basel und Frankfurt/M. Würzburg: Königshausen & Neumann (Menschenrechte und Ethik in der Medizin für Ältere), pp. 39–62.   edoc
Geneviève, L. D., Martani, A., Mallet, M. C., Wangmo, T. and Elger, B. S. (2019) “Factors influencing harmonized health data collection, sharing and linkage in Denmark and Switzerland: A systematic review”, PLoS ONE. Public Library of Science, 14(12), p. e0226015. doi: 10.1371/journal.pone.0226015.   edoc
Martani, A., Geneviève, L. D., Pauli-Magnus, C., McLennan, S. and Elger, B. S. (2019) “Regulating the Secondary Use of Data for Research: Arguments Against Genetic Exceptionalism”, Frontiers in Genetics. Frontiers Media, 10, p. 1254. doi: 10.3389/fgene.2019.01254.   edoc
Shaw, D., Favrat, B. and Elger, B. (2019) “Automated vehicles, big data and public health”, Medicine, health care, and philosophy. Springer, pp. 1–8. doi: 10.1007/s11019-019-09903-9.   edoc
Zürcher, T., Elger, B. and Trachsel, M. (2019) “The notion of free will and its ethical relevance for decision-making capacity”, BMC medical ethics. BioMed Central, 20(1), p. 31. doi: 10.1186/s12910-019-0371-0.   edoc | Open Access